Ethics Dumping: Case Studies from North-South Research Collaborations

Description

This book is published under a CC BY 4.0 license. This book provides original, up-to-date case studies of “ethics dumping” that were largely facilitated by loopholes in the ethics governance of low and middle-income countries. It is instructive even to experienced researchers since it provides a voice to vulnerable populations from the fore mentioned countries. Ensuring the ethical conduct of North-South collaborations in research is a process fraught with difficulties. The background conditions under which such collaborations take place include extreme differentials in available income and power, as well as a past history of colonialism, while differences in culture can add a new layer of complications. In this context, up-to-date case studies of unethical conduct are essential for research ethics training. Front Matter ....Pages i-xiii Ethics Dumping: Introduction (Doris Schroeder, Julie Cook, François Hirsch, Solveig Fenet, Vasantha Muthuswamy)....Pages 1-8 Social Science Research in a Humanitarian Emergency Context (Gwenaëlle Luc, Chiara Altare)....Pages 9-14 International Genomics Research Involving the San People (Roger Chennells, Andries Steenkamp)....Pages 15-22 Sex Workers Involved in HIV/AIDS Research (Anthony Tukai)....Pages 23-31 Cervical Cancer Screening in India (Sandhya Srinivasan, Veena Johari, Amar Jesani)....Pages 33-48 Ebola Vaccine Trials (Godfrey B. Tangwa, Katharine Browne, Doris Schroeder)....Pages 49-60 Hepatitis B Study with Gender Inequities (Olga Kubar)....Pages 61-66 Healthy Volunteers in Clinical Studies (Klaus Michael Leisinger, Karin Monika Schmitt, François Bompart)....Pages 67-70 An International Collaborative Genetic Research Project Conducted in China (Yandong Zhao, Wenxia Zhang)....Pages 71-80 The Use of Non-human Primates in Research (Kate Chatfield, David Morton)....Pages 81-90 Human Food Trial of a Transgenic Fruit (Jaci van Niekerk, Rachel Wynberg)....Pages 91-98 ICT and Mobile Data for Health Research (David Coles, Jane Wathuta, Pamela Andanda)....Pages 99-106 Safety and Security Risks of CRISPR/Cas9 (Johannes Rath)....Pages 107-113 Seeking Retrospective Approval for a Study in Resource-Constrained Liberia (Jemee K. Tegli)....Pages 115-119 Legal and Ethical Issues of Justice: Global and Local Perspectives on Compensation for Serious Adverse Events in Clinical Trials (Yali Cong)....Pages 121-128 Back Matter ....Pages 129-134