Autistic Community and the Neurodiversity Movement: Stories from the Frontline
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This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as “Don’t Mourn for Us”, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure. Front Matter ....Pages i-xix Introduction (Steven K. Kapp)....Pages 1-19 Front Matter ....Pages 21-21 Historicizing Jim Sinclair’s “Don’t Mourn for Us”: A Cultural and Intellectual History of Neurodiversity’s First Manifesto (Sarah Pripas-Kapit)....Pages 23-39 From Exclusion to Acceptance: Independent Living on the Autistic Spectrum (Martijn Dekker)....Pages 41-49 Autistic People Against Neuroleptic Abuse (Dinah Murray)....Pages 51-63 Autistics.Org and Finding Our Voices as an Activist Movement (Laura A. Tisoncik)....Pages 65-76 Losing (Mel Baggs)....Pages 77-86 Front Matter ....Pages 87-87 Neurodiversity.Com: A Decade of Advocacy (Kathleen Seidel)....Pages 89-107 Autscape (Karen Leneh Buckle)....Pages 109-122 The Autistic Genocide Clock (Meg Evans)....Pages 123-132 Shifting the System: AASPIRE and the Loom of Science and Activism (Dora M. Raymaker)....Pages 133-145 Out of Searching Comes New Vibrance (Sharon daVanport)....Pages 147-154 Two Winding Parent Paths to Neurodiversity Advocacy (Carol Greenburg, Shannon Des Roches Rosa)....Pages 155-166 Lobbying Autism’s Diagnostic Revision in the DSM-5 (Steven K. Kapp, Ari Ne’eman)....Pages 167-194 Torture in the Name of Treatment: The Mission to Stop the Shocks in the Age of Deinstitutionalization (Shain M. Neumeier, Lydia X. Z. Brown)....Pages 195-210 Autonomy, the Critical Journal of Interdisciplinary Autism Studies (Larry Arnold)....Pages 211-220 My Time with Autism Speaks (John Elder Robison)....Pages 221-232 Covering the Politics of Neurodiversity: And Myself (Eric M. Garcia)....Pages 233-241 “A Dream Deferred” No Longer: Backstory of the First Autism and Race Anthology (Morénike Giwa Onaiwu)....Pages 243-252 Front Matter ....Pages 253-253 Changing Paradigms: The Emergence of the Autism/Neurodiversity Manifesto (Monique Craine)....Pages 255-276 From Protest to Taskforce (Dinah Murray)....Pages 277-285 Critiques of the Neurodiversity Movement (Ginny Russell)....Pages 287-303 Conclusion (Steven K. Kapp)....Pages 305-318 Back Matter ....Pages 319-330
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