ENGLISH

Genetic Data And The Law: A Critical Perspective On Privacy Protection Genetic Data And The Law

By Mark Taylor

Book information

Publisher
Cambridge University Press
Year
2012
ISBN
1107007119, 9781107007116, 0511910126, 9780511910128, 1139338447, 9781139338448, 1139336703, 9781139336703, 6613571857, 9786613571854
Language
english
Format
PDF
Filesize
1 MB (1566874 bytes)
Series
Cambridge Bioethics And Law
Volume
16
Edition
1st Edition
Pages
246\246
Time added
2020-11-17 12:36:33
Medical Genetics: Law And Legislation; Medical RecRight Of; Data Protection: Law And Legislation

Description

Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.

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