Perspectives on palliative care for children and young people : a global discourse

Description

Cover Half Title Title Page Copyright Page Contents Foreword Preface About the editors List of contributors Acknowledgements Introducing our discourse Section 1: A global overview Section introduction 1 Paediatric palliative care as a basic human right 2 The International Children's Palliative Care Network (ICPCN): a global overview 3 Organisation of care in the UK 4 Organisation of care in Romania 5 Organisation of care in Uganda 6 Organisation of care in South Africa Section 2: Focusing on families: hearing the evidence Section introduction. 7 A research perspective: narrative research8 Part 1: 'Where's my sitcom?' The young adult's voice Part 2: Commentary on the young adult's story 9 Part 1: The parent's voice Part 2: Jamie's continuing care domains Part 3: Commentary on the parent's story: the key to integrating services 10 Part 1: A child's life path Part 2: A philosophical perspective on a father's tale 11 Hearing the voices of parents and carers 12 Hearing the voices of siblings 13 Transitions within the family Section 3: Minimising crisis points in paediatric palliative care Section introduction. 14 Pathways in palliative care15 Use of clinical practice guidelines and critical pathways 16 Minimising crisis points in paediatric palliative care: the ACT care pathways in action Section 4: Supporting transitions Section introduction 17 Transitions within acute care settings: the chaplain's perspective 18 Transitions at the beginning of life: psychological support 19 Managing transitions to hospice care: the hospice consultant's perspective 20 Supporting transitions: effective palliative care teams Section 5: Evidence/knowledge transfer into practice Section introduction. 21 Knowledge transfer within the general paediatric setting22 Supporting learning in paediatric palliative care 23 The path to excellence Index.