The Disability Bioethics Reader

Description

The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theoryhealth, disease, and the philosophy of medicineissues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious statesenhancement and biomedical technologyinvisible disabilities, chronic pain, and chronic illnessimplicit bias and epistemic injustice in health caredisability, quality of life, and well-beingrace, disability, and healthcare justiceconnections between disability theory and aging, trans, and fat studiesprenatal testing, abortion, and reproductive justice. The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies―scholarship that spans the social sciences and humanities―and gives serious consideration to the history of disability activism. Cover Half Title Title Page Copyright Page Table of Contents List of Tables List of Figures Notes on Contributors Disability Bioethics: Introduction to The Disability Bioethics Reader PART I: History, Medicine, and Disability 1 A Short History of Modern Medicine and Disability 2 Eugenics, Disability, and Bioethics 3 Theories of Disability PART II: Bioethics: Past and Present 4 A Critical History of Bioethics 5 Methods of Bioethics 6 Disability Bioethics: From Theory to Practice PART III: Philosophy of Medicine and Phenomenology 7 Disability and the Definition of Health 8 The Lived Experiences of Illness and Disability PART IV: Prenatal Testing and Abortion 9 Abortion, Disability Rights, and Reproductive Justice 10 A Fatal Attraction to Normalizing: Treating Disabilities as Deviations from “Species-Typical” Functioning 11 Being Disabled and Contemplating Disabled Children 12 The Wrongs of ‘Wrongful Birth’: Disability, Race, and Reproductive Justice PART V: Disability, the Life Course, and Well-Being 13 Disability, Ideology, and Quality of Life: A Bias in Biomedical Ethics 14 The Case of Chronic Pain 15 Chronic Illness, Well-Being, and Social Values 16 Disability and Age Studies: Obstacles and Opportunities PART VI: Issues at the Edge and End of Life 17 Death, Pandemic, and Intersectionality: What the Failures in an End-of-Life Case Can Teach about Structural Justice and COVID-19 18 Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic: Even the Best of Intentions Can Lead to Bias 19 Bioethical Issues in Dementia and Alzheimer’s Disease 20 Between “Aid in Dying” and “Assisted Suicide”: Disability Bioethics and the Right to Die 21 Theorizing the Intersections of Ableism, Sanism, Ageism and Suicidism in Suicide and Physician-Assisted Death Debates PART VII: Disability, Difference, and Health Care 22 Disability Bioethics and Race 23 Bioethics and the Deaf Community 24 Hunger Always Wins: Contesting the Medicalization of Fat Bodies 25 Trans Care within and against the Medical-Industrial Complex PART VIII: Intellectual and Mental Disabilities 26 Defining Mental Illness and Psychiatric Disability 27 Research Ethics and Intellectual Disability: Finding the Middle Ground between Protection and Exclusion 28 Inconvenient Complications to Patient Choice and Psychiatric Detention: An Auto-ethnographic Account of Mad Carework 29 Disability Bioethics, Ashley X, and Disability Justice for People with Cognitive Impairments PART IX: Disability Bioethics: Connections and New Directions 30 Feminist Theorizing and Disability Bioethics 31 Disability Bioethics and Epistemic Injustice 32 Disability Studies Meets Animal Studies PART X: The Ends of Medicine: Caring, Curing, and Justice 33 Improving Access within the Clinic 34 The Goals of Biomedical Technology 35 “Why Insist on Justice, Why Not Settle for Kindness?” Kindness, Justice, and Cognitive Disability 36 Selections of Brilliant Imperfection Index