The Official Parent's Sourcebook on Williams Syndrome: A Revised and Updated Directory for the Internet Age

Description

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to williams syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on williams syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Williams Syndrome: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Williams Syndrome; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Williams Syndrome; Chapter 5. Books on Williams Syndrome; Chapter 6. Multimedia on Williams Syndrome; Chapter 7. Periodicals and News on Williams Syndrome; Chapter 8. Physician Guidelines and Databases; Chapter 9. Dissertations on Williams Syndrome; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child's Rights and Insurance; ONLINE GLOSSARIES; WILLIAMS SYNDROME GLOSSARY; INDEX. Related topics include: Beuren Syndrome, Early Hypercalcemia Syndrome with Elfin Facies, Elfin facies syndrome, Elfin Facies with Hypercalcemia, Fanconi type idiopathic infantile hypercalcemia, Hypercalcemia-Supravalvar Aortic Stenosis, Williams-Beuren syndrome.