Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions: An International Perspective on Nurses' Roles and Interventions

Description

This book offers essential information on interventions and actions that enable and promote transition experiences for adolescents and young adults. It provides guidance on appropriate strategies that bring together these groups and caregivers in the context of transition preparation, and those which optimize adolescents’ and young adults’ ability to self-manage their healthcare. The health care transition for adolescents and young adults has gained more attention given the improved survival rates, including for those with long-term conditions. It is now estimated that more than 90% of children diagnosed with a long-term condition will survive into adulthood. The significant change in survival requires concomitant services to facilitate adolescents’ and young adults’ successful transition to adult health care, therefore providers need education, knowledge and skills to support healthcare transition services. A recent US national survey demonstrated only 10% of parents/caregivers reported that their children received transition preparation services. This book is targeted at nurses and pediatric and adult health care providers of different disciplines seeking guidance on which interventions are available, how they can be used, advantages and challenges, and how best to promote a seamless transition for all adolescents and young adults with long-term conditions. It provides several examples of transition programmes and initiatives worldwide. There is an increasing focus on how nurses can support transition but little guidance on what is effective and what has been tried. This book will fill a gap by addressing all of these issues outlined above and by providing worked examples from leading nurse researchers and academics worldwide. Front Matter ....Pages i-xii Healthcare Transition: An Overview and Introduction (Cecily L. Betz, Imelda T. Coyne)....Pages 1-17 Empowering Young Persons During the Transition to Adulthood (Mariela Acuña Mora, Carina Sparud-Lundin, Ewa-Lena Bratt, Philip Moons)....Pages 19-46 Determinants of Quality of Healthcare for Adolescents and Young Adults (Nabeel Al-Yateem)....Pages 47-70 Analysis of Self-Management and Transition Readiness Instruments for Clinical Practice (Kathleen J. Sawin, Rachel Margolis, Jaclyn R. MacFarlane Bookman, Melissa H. Bellin, Lynne Romeiser Logan, Jason Woodward et al.)....Pages 71-109 Measurable Outcomes for Transition: The Nurses’ Role (Bethany Coyne, Sara C. Hallowell)....Pages 111-126 Best Practice for Healthcare Transition: Development and Use of the Benchmarks for Transition (Susie Aldiss, Faith Gibson)....Pages 127-146 Transition of Care for Adolescents from Child to Adult Health Services: A Systematic Review (Fiona Campbell, Susie Aldiss, Katie Biggs)....Pages 147-169 Transition in Cystic Fibrosis: An International Experience (Daniel Office, Susan Madge)....Pages 171-190 On Your Own Feet: A Practical Framework for Improving Transitional Care and Young People’s Self-Management (AnneLoes van Staa, Mariëlle Peeters, Jane Sattoe)....Pages 191-228 Bridging Pediatric and Adult Healthcare Settings in a Nurse-Led Cystic Fibrosis Transition Initiative (Anna M. Gravelle)....Pages 229-256 Nurse-Led Effort in Developing, Implementing and Evaluating Healthcare Transition and Promoting Developmentally Appropriate Healthcare for Young People with Haemophilia (Kate Khair, Luke Pembroke, Deborah Christie)....Pages 257-280 Transitional Care in Endocrinology (Andrew A. Dwyer, Michael Hauschild)....Pages 281-317 Nursing Initiatives and Future Directions for Transition Practice and Research (Imelda T. Coyne, Cecily L. Betz)....Pages 319-336 Correction to: Empowering Young Persons During the Transition to Adulthood (Mariela Acuña Mora, Carina Sparud-Lundin, Ewa-Lena Bratt, Philip Moons)....Pages C1-C1