ENGLISH

Rare Diseases in the Age of Health 2.0

By Lodewijk Bos , Rajeev K. Bali , Michael Christopher Gibbons , Remco L. A. de Vrueh (auth.) , Simon Ibell (eds.)

Book information

Publisher
Springer-Verlag Berlin Heidelberg
Year
2014
ISBN
978-3-642-38642-8, 978-3-642-38643-5
DOI
10.1007/978-3-642-38643-5
Language
english
Format
PDF
Filesize
5 MB (5670565 bytes)
Series
Communications in Medical and Care Compunetics 4
Edition
1
Pages
292\307
Orientation
yes
Scanned
yes
Time added
2013-10-31 01:37:38
Biomedical Engineering; Health Informatics; Health

Description

This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy.

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