Ethical Dilemmas in Prenatal Diagnosis

Description

Technological developments in the life sciences confront us with new facets of a Faustian seduction. Are we „playing God“ more and more, as claimed by critical authors of modernity? Achievements in genetic research produce ethical dilemmas which need to be the subject of reflection and debate in modern societies. Denial of ambivalences that ethical dilemmas arouse constitutes a threat to societies as well as to individuals. The book presents a compilation of some of the results of the interdisciplinary European study “Ethical Dilemmas Due to Prenatal and Genetic Diagnostics” (EDIG), which investigated some of these dilemmas in detail in a field which is particularly challenging: prenatal diagnosis. When results from prenatal diagnosis show fetal abnormalities, women and their partners are confronted with ethical dilemmas regarding: the right to know and the right not to know; decision-making about the remainder of the pregnancy and the desire for a healthy child; responsibility for the unborn child, for its well-being and possible suffering; life and death. This book provides answers from an ethical, psychoanalytical and medical viewpoint. Front Matter....Pages i-xiv Ethical Dilemmas Due to Prenatal and Genetic Diagnostics. An Interdisciplinary, European Study (EDIG, 2005–2008)....Pages 1-34 Managing Complex Psychoanalytic Research Projects Applying Mapping Techniques – Using the Example of the EDIG Study....Pages 35-50 Distress and Ethical Dilemmas Due to Prenatal and Genetic Diagnostics – Some Empirical Results....Pages 51-64 Reconstruction of Pregnant Women’s Subjective Attitudes Towards Prenatal Diagnostics – A Qualitative Analysis of Open Questions....Pages 65-74 Prenatal Testing: Women’s Experiences in Case of a Conspicuous Test Result....Pages 75-82 Caring for Women During Prenatal Diagnosis: Personal Perspectives from the United Kingdom....Pages 83-98 Cooperation Is Rewarding If the Boundary Conditions Fit: Interdisciplinary Cooperation in the Context of Prenatal Diagnostics....Pages 99-108 Prenatal Genetic Counselling: Reflections on Drawing Policy Conclusions from Empirical Findings....Pages 109-119 Taking Risk in Striving for Certainty. Discrepancies in the Moral Deliberations of Counsellors and Pregnant Women Undergoing PND....Pages 121-138 Ethical Thoughts on Counselling and Accompanying Women and Couples Before, During and After Prenatal Diagnosis....Pages 139-146 Client, Patient, Subject; Whom Should We Treat? On the Significance of the Unconscious in Medical Care and Counselling....Pages 147-153 Decision to Know and Decision to Act....Pages 155-165 Moral Decision-Making, Narratives and Genetic Diagnostics....Pages 167-175 Prenatal Diagnostics and Ethical Dilemmas in a Mother Having a Child with Down Syndrome....Pages 177-189 Is There One Way of Looking at Ethical Dilemmas in Different Cultures?....Pages 191-203 Back Matter....Pages 205-207