Making Genetics and Genomics Policy in Britain: From Personal to Population Health

Description

This important book traces the history of genetics and genomics policy in Britain. Detailing the scientific, political, and economic factors that have informed policy and the development of new health services, the book highlights the particular importance of the field of Public Health Genomics. Although focused primarily on events in Britain, the book reveals a number of globally applicable lessons. The authors explain how and why Public Health Genomics developed and the ways in which genetics and genomics have come to have a central place in many important health debates. Consideration of their ethical, social, and legal implications and ensuring that new services that are equitable, appropriate, and well-targeted will be central to effective health planning and policymaking in future. The book features Interviews with leading individuals who were intimately involved in the development of genetics and genomics policy and Public Health Genomics. Insights from experts who participated in a pair of 'witness seminars'. Historical analysis exploiting a wide range of primary sources. Written in a clear and accessible style, this book will be of interest to those involved in the research and practice of genetics, genomics, bioethics, and population health, but also to NHS staff, policymakers, politicians, and the public. It will also be valuable supplementary reading for students of the History of Medicine and Health, Public Health, and Biomedical Sciences. Cover Half Title Title Page Copyright Page Contents Figures Acknowledgements Introduction Revolutions Approaches Definitions Structure Notes Bibliography 1. Origins The History of Genetics The Development of Medical Genetics The Arrival of Genomics The Development of Public Health Genetics and Public Health Official Interest in Genetics Genetics, Ethics, and Patients The Cambridge Connection Notes Bibliography 2. Foundations Influential Acronyms A Policy Foothold A Lonely Voice in the Wilderness: Genetics Meets Public Health Notes Bibliography 3. Progress Spreading the Word Mechanisms of Change Securing the Future Notes Bibliography 4. New Directions The Bellagio Initiative New Independence New Strategies 100,000 Genomes Notes Bibliography 5. Conclusion Notes Bibliography Index