ENGLISH

A Face for Picasso: Coming of Age with Crouzon Syndrome

By Ariel Henley

Book information

Publisher
Farrar, Straus and Giroux (BYR)
Year
2021
ISBN
9780374314095, 2020053393, 0374314098
Language
english
Format
EPUB
Filesize
2 MB (2490623 bytes)
Pages
400\0
Library
Mobilism
Time added
2022-02-18 21:21:45

Description

I am ugly. There's a mathematical equation to prove it.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease.Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.

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