Survivorship: A Sociology of Cancer in Everyday Life
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This book provides a contemporary and comprehensive examination of cancer in everyday life, drawing on qualitative research with people living with cancer, their family members and health professionals. It explores the evolving and enduring affects of cancer for individuals, families and communities, with attention to the changing dynamics of survivorship, including social relations around waiting, uncertainty, hope, wilfulness, obligation, responsibility and healing. Challenging simplistic deployments of survivorship and drawing on contemporary and classical social theory, it critically examines survivorship through innovative qualitative methodologies including interviews, focus groups, participant produced photos and solicited diaries. In assembling this panoramic view of cancer in the twenty-first century, it also enlivens core debates in sociology, including questions around individual agency, subjectivity, temporality, normativity, resistance, affect and embodiment. A thoughtful account of cancer embedded in the undulations of the everyday, narrated by its subjects and those who informally and formally care for them, Survivorship: A Sociology of Cancer in Everyday Life outlines new ways of thinking about survivorship for sociologists, health and medical researchers and those working in cancer care settings. Cover Half Title Series Page Title Page Copyright Page Contents List of Figures Acknowledgements List of Abbreviations Introduction Liam Survivorship Why a Sociology of Cancer Survivorship? Survivorship and Subjectivity Survivorship as Relational Survivorship as Innovation An Outline of a Sociological Program of Research on Cancer Qualitative Interviews With Patients, Carers and Professionals, and Focus Groups Solicited Diaries Photo Collection and Elicitation Chapter Outline References 1. Bodily Becomings Practice, Being and Becoming Knowing and Feeling Cancer: Bodies and (Decentring) Expertise Proximity and Temporality Dis/embodying Cancer Knowing Bodies Living Beyond Pathology Dying (but) Well Discussion References 2. Waiting, Hauntings and Surviving Waiting Hauntings Terminal Entanglements Normalcy and Normativity 'It Is Like a Disease by Itself': Side Effects, Suffering and the Valorisation of Longevity Discussion References 3. Malignant Attitudes The Power and Paradox of Attitude Moral Attitudes (and the Push-Back) Attitude as Relationality: Policing Positivity Discussion References 4. Entangled and Estranged Entanglements of Time and Space Entangled in Cancer 'Making Memories': The Dis/continuity of Past, Present and Future Anticipating Absence: Spectres of Cancer in the Present Finding Normal? Dis/continuity in Relation to Others Past, Present and Future Discussion References 5. Collective Emotions, Affective Relations Affect, Normativity and Surviving-with Cancer Survival-in-Relation The Circulation and Interactivity of Emotion Accumulation and Devaluation: Surviving Positively, or Silently Disclosure, Abjection, (In)Authenticity Discussion References 6. Enchantment, Acceleration and Innovation The Promise of Precision Enchantment and Acceleration towards Cure Cost, Value and Access Uneven Advancement in Practice Sexy Tech and Snake Oil: The Affective Attraction and Vulnerability of Precision Medicine Affording Access Valuing Innovation, Valuing Care Discussion References 7. Participation and the Making of Possibility Considering Hope and Its Consequences The Allure of Participation Finding a 'Zebra in a Field of Brumbies': Hope, Hype and Vulnerability Resistance, Reluctance and the 'Good Life' Discussion Note References Conclusion Meaning Makes (Things) Matter Cancer Reveals (Unsettling) Connectivities Time Unravels (on) Itself The Normative Scene of Cancer Settles on Us Cancer Survivorship Is an Evolving Market References Index
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